Introduction

Hello, thank you for taking your time to learn about the Thyroid Eye Disease Registry. 
This sheet is being provided to you to give you the information and invite you to be the part of this registry and subsequent research. You do not have to decide today whether or not you will participate in the registry. Before you decide, you can talk to anyone you feel comfortable with about the registry. There may be some terms that you do not understand. Please ask your treating ophthalmologist or oculoplastic surgeon as you go through the information. If you have questions later, you can ask them to the study doctor or the staff.

 

A. Title of the registry:

 

Nepal Thyroid Eye Disease Registry 
 
B. What is the Nepal Thyroid Eye Disease Registry?

 

The Nepalese Society for Oculoplastic Surgeons (NESOS) has launched the Nepalese Thyroid Eye Disease Registry to collect information about thyroid eye                   disease  (TED) in Nepal. TED is a condition that affects the eyes, usually in people with an overactive thyroid gland. The registry will help doctors and researchers           understand the condition better and develop better treatments for patients. 
 
C. Who are the Investigators?

 

NESOS in association with Nepal Health Research Council (NHRC) are the researchers. NESOS is the only society of the orbital and oculofacial plastic surgeons  of Nepal with 43 active members. Oculoplastic surgeons treat the conditions related to the eyelids, tear drainage pathway, bony orbit and orbital contents                          pathologies, ophthalmic tumors and oculofacial aesthetics. 
 
D. Why is the registry important?

 

The Registry is important because it will help doctors and researchers understand the prevalence, natural course, and management of TED in Nepal. The registry            will also help to identify the factors that may increase the risk of developing TED, such as genetics or environmental factors. This information can help doctors                provide better care to patients with TED and develop new treatments for the condition

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Proforma

Consent form

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Institution acceptance form

Information sheet for participants

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